Disclaimer: This post is NOT an indictment on any of our friends or family. If you know our family and read this and feel like I am talking about you specifically, you've misread it. It is a general observation that I've made as I've watched families age.
I've been witness to something in the last few years that's hard to explain and yet is a reality for anyone with a significant disability or emotional issue. The phenomenon is that as these individuals age they become more and more isolated. When a child is small and has some type of behavior or significant need, those around that child deal with it. They may put up with it or they may ignore it, but for the most part, the child still goes through life with a fair amount of people around him or her - classmates, teachers, friends, family etc.
As that child ages and the behaviors or the needs continue, the child starts to lose some of those around him or her that they used to interact with. Some things are merely natural - all of us go through it. Kids graduate from high school and they leave their circle of friends to go out into the world. When this happens, they naturally lose teachers that used to be around them. For most people, they seem to find a new circle to share life with. It may be college roommates or friends at work or church or clubs, but they do find people to be with and share things with.
It's not quite the same for those who have a significant disability or emotional issue in their life. They may not be physically or mentally able to go off to college. Or their behavior may prevent them from maintaining relationships. Because of these limitations, they ultimately become more isolated. Their previous friends and acquaintances have 'moved on' and are no longer able to (or in some cases no longer willing to) keep in contact with the person with a significant need.
I've watched a number of people who were a part of a close knit group like a sports team or a church group or a club who have not been able to continue on to college or work or the military who have watched most of the friends in those groups move on. They are unable to keep up or be a part of this next phase of life so they become isolated. Others merely become isolated because they are no longer eligible to be a part of the group they were a part of for 4 or 5 years and they can't go to the events any longer.
This is truly a sad phenomenon and even more so because I don't see an answer for how to stop it. It's natural in life to "move on." You can't really point to some one or some thing and say "HEY! That's the reason these people become isolated." If this didn't happen, or that person did this, then this issue would go away. In other words, no one is to blame, but it continues to be a problem for those with significant needs.
I've watched some families try to overcome it by helping their child find new groups and/or creating new groups with old friends. I've watched some individuals merely drift off into isolation until no one knows where that person is any more.
My charge to you who read this is to look for ways to connect with people in your lives who have significant needs. Those needs can be a disability, the death of a spouse, divorce, or an emotional issue. The list is not exhaustive. Take the time to send a card, call someone, connect in a group, offer a hug or whatever you feel might help make that person's isolation a little less. It will make a world of difference for that person and will connect both of you in new and meaningful ways.
1 comment:
Hi Scott,
Your e-mail resonated with me, especially being a parent of a child with a disability. Obviously I still think about Vicki and Matt as I do check your blog every once in a great while for news on the kids. They are wonderful people and I hope that in some way I can remain a small part of thier lives. Please tell them hello for me and tell Vicki I was excited tonight to read about her MP3 music! I hope they remember me. I pray things are going well for all of you. Feel free to give me updates or have Vicki e-mail me! She can tell me her favorite music groups. I am teaching at Cambridge-Isanti high school now. I do love it! I teach students with the most significant disabilities, right up my alley. My school e-mail is dstromquist@cambridge.k12.mn.us. Thanks, and happy Valentine's Day to you all!
-Donna Stromquist
Post a Comment