We started the day with a couple of blood tests to see if we needed to be concerned about things. Her white blood cells are elevated and a test to check for inflammatory markers in the blood is also elevated. Next they drew cerebral spinal fluid through the pump, took blood and urine cultures. The infectious disease doctor came up to say that the spinal fluid is cloudy and full of white blood cells. He explained to me that they can not do anything to treat that plastic catheter in her spine to rid it of bacteria. It has to go. So, we will be spending the next week turning the Baclofen dose down on her pump in order to prepare for surgery to remove the pump. They will be putting her into withdrawal. They will give her oral Baclofen and Valium to help to lessen the effects, but I don't think this is going to be fun. She will be getting a central IV this afternoon in order to start IV antibiotics.
I don't know how long she will have to stay after surgery, but it will be at least 10 days from now. Please keep us in your prayers. Vicki was in the room for this whole discussion. So far she is relaxed, but she is on Valium. I haven't seen any for the parents...
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