Laura stayed with Matt last night and will be there today (Sat). She reported that they had to suction Matt every 1-2 hours during the night. He's not coughing up junk very well and needs help to get it out.
When you are in the hospital in order to go home you need all of the tubes they put in you to come out (sometimes you go home with one). We call it the "tube game." It's scored like golf - the fewer tubes you have, the closer you are to victory. I know, it's a little silly, but you have to use humor and games to get through hospital stays.
Matt has scored a "2" with the another tube being removed yesterday! Now he needs to get off of oxygen and get his IV out to win the tube game. He also needs to handle the junk in his throat.
He was winning the tube game, but hasn't won the infection/junk game. He has some kind of "bug" that needs an antibiotic and needs the repeated suctioning. He will stay in ICU at least one more day.
Saturday night:
Matt will be taking a temporary loss in the "tube game." He hasn't eaten in 3 days so they are concerned about his nutrition even though he's had IV fluids. He also isn't swallowing very well. Tomorrow (Sunday) they will place an "NG" tube in so they can feed him. Not the direction we want to go, but necessary to get him healthy.
He's also getting a medication via a patch (no he doesn't need to quit smoking), to help with his secretions.
Saturday, June 30, 2012
Friday, June 29, 2012
Matt Man III
Friday morning around 9 a.m. the moment Matt has been asking for - the tube in his throat has been removed! When he heard he was getting the tube out, he pumped both fists! He still has his sense of humor and wit.
He will stay at least one more day in the ICU to be closely monitored, but at least he can breathe on his own. He will have a swallow evaluation today to make sure he can manage food and drink. He would really like to drink something, but we'd like to make sure everything works so we don't need to put a tube back in.
He had the swallow eval at about 2pm. He did OK, but really needs to do better before he can eat or drink.
Thanks again to all who have prayed and are praying.
Matt sends the "thumbs up" sign.
He will stay at least one more day in the ICU to be closely monitored, but at least he can breathe on his own. He will have a swallow evaluation today to make sure he can manage food and drink. He would really like to drink something, but we'd like to make sure everything works so we don't need to put a tube back in.
He had the swallow eval at about 2pm. He did OK, but really needs to do better before he can eat or drink.
Thanks again to all who have prayed and are praying.
Matt sends the "thumbs up" sign.
Thursday, June 28, 2012
Matt Man II
It's always amazing to me how God orchestrates things, but especially when life is a little more intense.
Today (Thursday) I was at home for a short time while I prepared for some work I needed to do when Matt's very good friend, Peter called. Peter has been Matt's friend since 8th grade and is the truest of true friends. I had Peter on my mental list of people to call, but had not gotten to him before he called our house.
He was hoping to hang out with Matt like they've done for a number of years. Since Matt was in the hospital that wasn't going to work. I had the opportunity to mention Matt's situation and Peter thought he would be able to come and visit Matt. Not only did he and his dad come visit, but they were kind enough to drive me back to the hospital, visit, and then bring Laura home!
God shows up in so many "coincidences" that you really have to be blind NOT to see Him at work.
An update on Matt's status - Thursday afternoon he tried to breathe without complete support of the ventilator, but was having spells of apnea (no breathing) and was not successful. The plan is to keep him on the ventilator for another day and try again. He also is running a temperature so there is some concern about possible infection.
Tonight Matt watched some Tim Hawkins videos on You Tube - his favorite. He was fairly responsive and interactive. He's using sign language that he picked up at school. I'm impressed with his ability to try and communicate without his voice.
He's in some pain from time to time, but calms down quickly when pain medications are given.
To all who are praying, thank you. It is very much appreciated.
Today (Thursday) I was at home for a short time while I prepared for some work I needed to do when Matt's very good friend, Peter called. Peter has been Matt's friend since 8th grade and is the truest of true friends. I had Peter on my mental list of people to call, but had not gotten to him before he called our house.
He was hoping to hang out with Matt like they've done for a number of years. Since Matt was in the hospital that wasn't going to work. I had the opportunity to mention Matt's situation and Peter thought he would be able to come and visit Matt. Not only did he and his dad come visit, but they were kind enough to drive me back to the hospital, visit, and then bring Laura home!
God shows up in so many "coincidences" that you really have to be blind NOT to see Him at work.
An update on Matt's status - Thursday afternoon he tried to breathe without complete support of the ventilator, but was having spells of apnea (no breathing) and was not successful. The plan is to keep him on the ventilator for another day and try again. He also is running a temperature so there is some concern about possible infection.
Tonight Matt watched some Tim Hawkins videos on You Tube - his favorite. He was fairly responsive and interactive. He's using sign language that he picked up at school. I'm impressed with his ability to try and communicate without his voice.
He's in some pain from time to time, but calms down quickly when pain medications are given.
To all who are praying, thank you. It is very much appreciated.
Matt Man
I haven't had to post personal messages for quite some time. I've tried to keep the medical information to a minimum.
Yesterday (Wednesday) we brought Matt in for an elective surgery to help with his drooling. The surgery went well! He was in recovery for a little while longer than expected, but that was partially because he didn't wake up fast from the little anesthesia he had.
Once he got to his room, he was alert and responsive. He was in some pain, but doing OK overall. He was having a tough time coughing and needed some suctioning. It was no big deal for a while, but his O2 sats (oxygen saturation levels) were going down. As the afternoon and evening wore on, the sats got worse and he was having to be suctioned more and more. His pain level was fine and all the rest of his vital signs were fine.
Eventually his nurse called for respiratory therapy to help with suctioning and his airway. They put him on a bi-pap machine to force air into his lungs. Unfortunately his O2 sats weren't as high as they would have liked. That meant he needed to go to ICU.
The trip from his room to the ICU was mildly eventful as he started to become less responsive. By the end of the elevator ride, his nurse, the respiratory therapist and the nursing assistant who were bringing him down, were "running."
A little aside - We've all seen and "ER" type show and how they run with a critical patient. Let me say that reality is a little different. You can't run with a hospital bed, a bi-pap machine and an IV pole. You can move more quickly and work hard to get him stable and they did. They handed him off to the ICU staff who got him settled. This was the "please step out in the hall" moment of the evening.
We now return to our story - Once in his new bed, I was allowed back in and they took some blood to get his oxygen level. I could see the dark color of his blood which is supposed to be bright red and I could see the looks on the faces of the staff. The levels came back way too low and they decided to intubate him which means put a tube down his throat so they can hook up a machine to help him breathe.
There were no less than 8-10 people in his room working quickly to get that done for him. I sat in the corner and watched my own version of "ER" played out on my son. I'm thankful to God, that I understood enough of what's going on so that I wasn't being freaked out. I was definitely concerned, but OK enough to watch this happen.
The part that bothered me is what Tim had said the day before Matt's surgery. It went something like, "I hope Matt's surgery goes OK, cause I would rather have him drooling than dead." When your 9 year old has a premonition-like comment, it weighs heavily on you. You wonder if you made the right decision to help your child by putting him through this.
He became more stable throughout the evening and night. I eventually left his room to get a little sleep. He's not out of the woods yet (Thursday morning) as he spiked a temperature overnight. His breathing and O2 levels are a lot better, but he's got the temperature and some crud in his lungs.
So we are back to the wait-and-see or should I say pray-and-see stage. The thing I didn't mention above is how I waited so long before I started praying. We have access to the creator of the universe and yet so often I forget to ask for his help. After the craziness, I opened the bible on my iPod and it was at the verse in James that says "is any of you in trouble? He should pray." Yep that's us, we're in trouble and we're praying now.
Yesterday (Wednesday) we brought Matt in for an elective surgery to help with his drooling. The surgery went well! He was in recovery for a little while longer than expected, but that was partially because he didn't wake up fast from the little anesthesia he had.
Once he got to his room, he was alert and responsive. He was in some pain, but doing OK overall. He was having a tough time coughing and needed some suctioning. It was no big deal for a while, but his O2 sats (oxygen saturation levels) were going down. As the afternoon and evening wore on, the sats got worse and he was having to be suctioned more and more. His pain level was fine and all the rest of his vital signs were fine.
Eventually his nurse called for respiratory therapy to help with suctioning and his airway. They put him on a bi-pap machine to force air into his lungs. Unfortunately his O2 sats weren't as high as they would have liked. That meant he needed to go to ICU.
The trip from his room to the ICU was mildly eventful as he started to become less responsive. By the end of the elevator ride, his nurse, the respiratory therapist and the nursing assistant who were bringing him down, were "running."
A little aside - We've all seen and "ER" type show and how they run with a critical patient. Let me say that reality is a little different. You can't run with a hospital bed, a bi-pap machine and an IV pole. You can move more quickly and work hard to get him stable and they did. They handed him off to the ICU staff who got him settled. This was the "please step out in the hall" moment of the evening.
We now return to our story - Once in his new bed, I was allowed back in and they took some blood to get his oxygen level. I could see the dark color of his blood which is supposed to be bright red and I could see the looks on the faces of the staff. The levels came back way too low and they decided to intubate him which means put a tube down his throat so they can hook up a machine to help him breathe.
There were no less than 8-10 people in his room working quickly to get that done for him. I sat in the corner and watched my own version of "ER" played out on my son. I'm thankful to God, that I understood enough of what's going on so that I wasn't being freaked out. I was definitely concerned, but OK enough to watch this happen.
The part that bothered me is what Tim had said the day before Matt's surgery. It went something like, "I hope Matt's surgery goes OK, cause I would rather have him drooling than dead." When your 9 year old has a premonition-like comment, it weighs heavily on you. You wonder if you made the right decision to help your child by putting him through this.
He became more stable throughout the evening and night. I eventually left his room to get a little sleep. He's not out of the woods yet (Thursday morning) as he spiked a temperature overnight. His breathing and O2 levels are a lot better, but he's got the temperature and some crud in his lungs.
So we are back to the wait-and-see or should I say pray-and-see stage. The thing I didn't mention above is how I waited so long before I started praying. We have access to the creator of the universe and yet so often I forget to ask for his help. After the craziness, I opened the bible on my iPod and it was at the verse in James that says "is any of you in trouble? He should pray." Yep that's us, we're in trouble and we're praying now.
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